Syngap1.|Worldwide.|Map.

View the map
Registration

SynGAP Global Network has a

“What is SynGAP?”

page that reviews the basics if you want. There is as well a trial count of all the patient on earth,

here is our current number.

 

If You Want To Go Fast, Go Alone. If You Want To Go Far, Go Together.

Community

African Proverb

Coming Together Is A Beginning; Keeping Together Is Progress; Working Together Is Success.

Family

Henry Ford

None Of Us Is As Smart As All Of Us.

Team

Ken H Blanchard

Male

Female

NoGender

Total population on map

How the registration works ?

How do I put my pin on the world map?Enter your data into the form, this will create a pin in your chosen location which you can later edit. You may choose the GPS coordinates of your pin. Your local SGN data guardians periodically review the map for accuracy to maintain an accurate family count. Guardians may add anonymous pins to the map to signify a family is known to SGN in that location. Anonymous pins will not contain any Personal Identifying Information and will generally be localized to the nearest major city to retain anonymity.

Why a worldmap ?

The map is a simple yet powerful visualisation to show the prevalence of SYNGAP1 worldwide. We follow in the footsteps of other rare genetic disorder foundations such as ADNP, GRIN2B and DYRK1A who also maintain similar maps.


https://www.adnpfoundation.org/map.html
http://grin2b.com/grin2b-map/
http://www.dyrk1a.org/families

What are the data used for ?

The map tool is intended to enable family connections. It will allow families to anonymously reach out to each other.

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GPS coordinate will be randomize to 2km/1mile around for privacy reason. This can take few seconds to be displayed.

Privacy statement


																		

Déclaration de confidentialité


																		

Declaracion de privacidad


																		

Privacy verklaring


																		

Datenschutzerklärung


																		


Do not submit multiple time your data. It can take up to one day for the data to be visible.