Syngap1 Worldwide Map

View the Map Join Our Community
Census Statistics

SynGAP Global Network

has a "What is SynGAP?" page that reviews the basics if you want. There is as well a trial count of all patients on earth, view our patient census map here or explore detailed statistics and trends.

"If You Want To Go Fast, Go Alone. If You Want To Go Far, Go Together."

African Proverb Community

"Coming Together Is A Beginning; Keeping Together Is Progress; Working Together Is Success."

Henry Ford Family

"None Of Us Is As Smart As All Of Us."

Community Statistics

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Male Patients
0
Female Patients
0
Unspecified Gender
0
Active Community Members

Continental Distribution

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North America
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South America
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Europe
0
Africa
0
Asia
0
Oceania

Top 6 Countries

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Country 1
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Country 2
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Country 3
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Country 4
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Country 5
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Country 6

Patient Age Brackets

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0-5 years
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6-12 years
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13-17 years
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18+ years

Join Our Global Community

Add your pin to the world map and connect with other families

Registration Form

Personal Information
First name is required
Last name is required
Valid email is required
Gender selection is required
Valid year of birth is required
Language selection is required
Location Information
GPS coordinates will be randomized within 2km/1mile for privacy
Please allow GPS access when prompted, or enter your location manually below. GPS helps us automatically fill in your country, city, and state information.
GPS access was denied or unavailable. Please enter your location manually using the fields below. Autocomplete will help you as you type.
Country is required
City is required
Privacy & Display Preferences
Leave all unchecked to show only an anonymous pin
Do not submit multiple times. It may take up to one day for data to be visible on the map.

Frequently Asked Questions

How does registration work?

Enter your data into the form to create a pin in your chosen location which you can later edit. You may choose the GPS coordinates of your pin. Your local SGN data guardians periodically review the map for accuracy to maintain an accurate family count.

Why a world map?

The map is a simple yet powerful visualization to show the prevalence of SYNGAP1 worldwide. We follow in the footsteps of other rare genetic disorder foundations.

How is my data used?

The map tool is intended to enable family connections. It allows families to anonymously reach out to each other while maintaining privacy and security.

How to update my data?

You will receive a pass key to update your pin. A link to the modification page will be included in your registration confirmation email.